Friday, December 21, 2012

Mady the red nosed reindeer




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A NICU Poem

While I am so happy and thankful to have our sweet Silas home with us for Christmas, I can't help but to think of the parents who are spending Christmas with their babies in the NICU. I got my miracle, and they are still there praying for their miracle. The NICU is always on my mind. I found this poem and thought I should share it...


'Twas the night before Christmas, and in each isolette
Little creatures were squirming and getting all set;
Machinery sat by their bedsides with care,
In hopes that good breathing skills soon would be there.

Day shifters were home all snug in their beds,
As visions of overtime danced in their heads;
While preemies on ventilators, and some on CPAP,
Had just settled down for a long winter's nap...

When out in the hall there arose such a clatter,
The residents woke up to see what was the matter.
Away from the sink I flew like a jet
To make sure all was well at my baby's isolette.

Some bilirubin lights with their powerful glow
Gave the lustre of mid-day to babies below,
When, there before my wondering eyes, it would seem,
Was an oversized stroller and a medical team.
With a handful of needles with which they could stick you,
I knew in a moment it must be St. Nicu.

More rapid than eagles his specialists came,
And he whistled, and shouted, and called them by name:
"Now, Nurses! Now, Residents! Now, Neonatologists!
On, Social Workers! On, Respiratory and Occupational Therapists!
From the front of the unit! To the end of the hall!
Now dash away! Dash away! Dash away all!"

Up to each baby's cribside they flew,
With the stroller full of toys, and St. Nicu too.
And then, in a twinkling, they stopped at each bed
And tucked in the babies and got them all fed.

As I looked at my baby, and was turning around,
Down our aisle St. Nicu came with a bound.
He was dressed in red scrubs, and I could instantly tell
That his clothes had an obvious hospital smell;
A bag of stuffed animals was flung on his back,
And he looked like a peddler just opening his pack.
A little red pen he held tight in his teeth,
And a stethoscope encircled his neck like a wreath.

He was chubby and plump, with a few extra pounds,
And I laughed when I saw him there doing his rounds.
A turn of his clipboard and a twist of his head
Soon gave me to know I had nothing to dread;
He spoke few words, but came straight to my side,
And running down his face was a tear he had cried.

And laying his hand on the back of my head,
He gave me a nod, and slowly he said:
"Each night you come here you're aware of the danger,
But your baby is loved by the One in the manger."

Then the medical team gave a thumbs-up and smiled
And St. Nicu placed an animal next to my child.
But I heard him exclaim, as they rolled out of sight,
"Merry Christmas, tiny baby, and have a wonderful night!"

Friday, December 7, 2012

Surgery Number Six

On Wednesday Silas had surgery to get rid of the posterior urethral valves (PUV). It was supposed to be an out patient surgery. There was a small complication with it. His anatomy is so messed up from his bladder and kidneys being swollen. When they went to put a catheter in him after the surgery was over it didn't go where it was supposed to, and went straight down through the bladder opening and nicked his rectum. They doctors were worried about infection, and were talking about him getting a colostomy. Thank God they were very proactive and started antibiotics right away. His is doing a lot better now, and should be out of the hospital by Monday.

Waking up after surgery and seeing mommy!


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Wednesday, November 28, 2012

Silas is home



After 6 weeks, 5 surgeries, and dialysis... Silas came home November 2nd!!!



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Monday, October 1, 2012

Silas is Here!!!

Our newest baby Silas was born September 22nd. The docs took him a week and a half early because he was sitting in no amniotic fluid, and his bladder and kidneys were full of fluid. He had hydronephrosis because of posterior urethral valves. Right after he was born he was rushed to the NICU. His lungs were underdeveloped, his right one had a hole in it and he had pneumothorax.  Since he was born he has had 1 procedure and 3 surgeries to save his kidneys. One surgery was a ureterostomy. It is when you take the ureters and bring them up to the sides. So, he pees out of his sides now. He is currently doing dialysis. Hopefully it will be only for a few weeks. If his kidneys still aren't doing their thang after that he will have to get a kidney transplant when he is one. Today I held him for the first time since he was born. He will be in the NICU for the next several weeks. We are just thankful he is alive and well!!!


Saturday, February 4, 2012

Friday, January 13, 2012

Listen to the Sound by Building 429

Another great song I can't get enough of. By the way, if you don't already... follow me on twitter @TheMadXan!